Living Well With Cystic Fibrosis

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Cystic Fibrosis Community Care (CFCC)

Cystic Fibrosis Community Care (CFCC)

CFCC promotes awareness of CF and provides support, advocacy and information to the CF community across NSW and VIC. They also fund medical research. CFCC provide direct services and have a range of information and resources on their website about CF and living with CF. They also have specific websites for parents of a newly diagnosed child with CF (see CF Baby Steps: http://www.cysticfibrosisbabysteps.org.au/) and for young people and adults living with CF (see CFStrong: https://cfstrong.org.au/). Read More

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Cystic Fibrosis South Australia (CFSA)

Cystic Fibrosis South Australia (CFSA)

CFSA is the peak body for all people living with CF in South Australia. CFSA provides access to information, support services, advocacy, education and practical support. They also contribute to national research. They have information about CF and living with CF on their website. Read More

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Cystic Fibrosis Australia (CFA)

Cystic Fibrosis Australia (CFA)

CFA is the peak consumer body for people living with CF in Australia. They focus on collaborative programmes, research, funding, partnerships and advocacy. CFA encourages cohesion amongst the state and territory bodies, manages the national CF data registry, leads the national research program, conducts a biennial CF conference and supports the quality improvement program. They have useful information about CF, living with CF, and mental health on their website as well as links to CF-Donut (information about CF and comorbidities) and Consumer Connect. Read More

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Cystic Fibrosis New Zealand (CFNZ)

Cystic Fibrosis New Zealand (CFNZ)

CFNZ is the peak consumer body for people living with CF in New Zealand. They focus on support, research, funding, and advocacy. CFNZ manages the national CF data registry and leads the national research strategy. They have useful information about CF and living with CF, including supporting a family with CF, parenting a child with CF, family planning, CF at school and work, and travelling with CF. Read More

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Family planning

Family planning

A CFNZ guide for family planning for people with CF and their partners, including links to further information about genetics of CF, and support services. Read More

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Headspace

Headspace

Headspace is the Australian National Youth Mental Health Foundation which provides mental health information and services to people 12-25 years old. They have information on mental health, wellbeing, navigating life, alcohol and other drugs and work and study. They provide in-person and phone based services throughout Australia. Read More

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