Living Well With Cystic Fibrosis

Archive

CFStrong: Physical Wellbeing for Young People

CFStrong: Physical Wellbeing for Young People

Information and resources about physical wellbeing, available on the CFStrong website, including the role for exercise and fitness, and managing CF treatments. CFStrong includes stories from people living with CF who share their experience. Read More

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CFStrong: Growth Mindset

CFStrong: Growth Mindset

Information and resources about growth mindset, finding your voice and self-advocacy, available on the CFStrong website. Read More

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CFStrong: Getting the language right

CFStrong: Getting the language right

A health practitioners guide to writing reports, letters, forms, and assessments for the NDIS, available on the CFStrong website. Read More

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CFStrong: A Guide for Health Professionals

CFStrong: A Guide for Health Professionals

This guide provides a comprehensive overview of cystic fibrosis for health professionals. It covers all aspects of cystic fibrosis including gastrointestinal, psychosocial, infection prevention and control, lung transplantation, family planning, end-of-life issues, continuing care in the community, and future directions. CFStrong includes stories from people living with CF who share their experience. Read More

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Infection Control

Infection Control

CFWA provides various factsheets for people with CF, carers, and family. This includes information on cepacia, common infections, Pseudomonas, immunizations, infection and prevention control and the flu. (See infection control section) Read More

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Transplant

Transplant

Advances in CF treatment have resulted in people living longer healthier lives, however some people will still require an organ transplant to further prolong their lives. This link provides information on lung transplant, transplant support and other available resources. Read More

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Medications and Procedures

Medications and Procedures

CFWA provides various factsheets for people with CF, carers, and family. This includes information on bronchoscopy, CFTR modulator therapies, enzymes, lung transplant, mediations, nebulisers, percutaneous endoscopic gastrostomy (PEG), peripherally inserted central catheter (PICC), pill swallowing, ports and spirometry (see Medications and procedures section). Read More

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Mental Health

Mental Health

CFWA provides various factsheets for people with CF, carers, and family. This includes information on anxiety and young people, depression and young people, loneliness and isolation, mental health care plan and rebates, procedural anxiety in young people and adults, spoon theory and post traumatic stress disorder (see Mental health section). Read More

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Nutrition

Nutrition

CFWA provides various factsheets for people with CF, carers, and family. This includes information on dietary supplements, eating when unwell, diet and exercise, fat protein and carbohydrates, healthy fats, maintaining health weight, managing nutrition, modulator drugs and diet, nutrition for babies and children, pregnancy and nutrition, post-transplant nutrition and salt and fluids. (Seee Nutrtion section) Read More

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School and day-care

School and day-care

CFWA provides various factsheets for people with CF, carers, and family. This includes information on going to day-care with CF, starting school, going to high school, exercise and sport in school and school camps (see School and daycare section). Read More

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