Health Professional

Trusted Care

Firefly Admin March 21, 2023

Trusted Care, a subsidiary of Cystic Fibrosis Queensland, is an NDIS provider, supporting to people with CF to allow them to live an ordinary life. Their plan management and support services are available to all Australians who qualify for NDIS support. Read More

Cystic Fibrosis Trust

Firefly Admin March 21, 2023

UK-based Cystic Fibrosis Trust is "the charity uniting people to stop cystic fibrosis". They provide information and support relating to being physically well, mental well, and being fulfilled. The "Life with CF" section on their website includes the Award-winning pre-school and primary school pack, as well as information and resources to support people through every life stage. Read More

Comfort Kids

Paula Woodward March 21, 2023

The Comfort Kids Program provides procedural pain management at the Royal Children's Hospital in Melbourne. The aim is to minimise pain, distress and anxiety associated with medical procedures through a multi-modal approach, combining non-pharmacological and pharmacological interventions. Read More

Chronic Illness Peer Support (ChIPS)

Firefly Admin March 21, 2023

ChIPS is a program for young people aged 12–25 with a primary diagnosis of a chronic illness, based at the Royal Children's Hospital in Melbourne (VIC). ChIPS offers peer support programs, camps, socials and leadership opportunities for children and young people across Victoria. Read More

Ronald McDonald Learning Program

Firefly Admin March 21, 2023

The Ronald McDonald Learning Program assists school-aged children with serious illnesses and injuries to catch up on missed education following treatment and recovery. They provide a suite of educational support services, including therapy sessions and one-on-one tutorials, tailored to students’ individual needs. Read More

TLC for Kids

Paula Woodward March 21, 2023

TLC for Kids gives practical and emotional relief to sick kids and their families across Australia. Upon referral from a Healthcare Professional, they provide distraction, to reduce anxiety associated with hospital visits, and provide services, memorable experiences and financial assistance. Read More

CarerHelp

Paula Woodward March 21, 2023

CarerHelp provides access to high quality information and resources to help you feel informed, prepared and supported if you are caring for someone who is seriously ill. The website can connect you to services, help you to engage with healthcare teams and look after yourself. Read More

ReachOut

Paula Woodward March 21, 2023

ReachOut helps young people access mental health support. They provide online mental health support, peer support, information and resources for young people, parents, carers and teachers. Read More

Cystic Fibrosis Foundation (CFF)

Paula Woodward March 21, 2023

Cystic Fibrosis Foundation is a US-based organisation that offers a variety of information about CF and managing CF, health and wellness, nutrition, family life, travel, treatment and care. Their rich community blog offers stories from a wide range of people living with CF. Bear in mind the content is written for a US audience - especially around insurance and treatment costs. Read More

Cystic Fibrosis Community Care (CFCC)

Paula Woodward March 21, 2023

CFCC promotes awareness of CF and provides support, advocacy and information to the CF community across NSW and VIC. They also fund medical research. CFCC provide direct services and have a range of information and resources on their website about CF and living with CF. They also have specific websites for parents of a newly diagnosed child with CF (see CF Baby Steps: http://www.cysticfibrosisbabysteps.org.au/) and for young people and adults living with CF (see CFStrong: https://cfstrong.org.au/). Read More