Living Well With Cystic Fibrosis

Archive

CFStrong: Physical Wellbeing for Young People

CFStrong: Physical Wellbeing for Young People

Information and resources about physical wellbeing, available on the CFStrong website, including the role for exercise and fitness, and managing CF treatments. CFStrong includes stories from people living with CF who share their experience. Read More

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CFStrong: Growth Mindset

CFStrong: Growth Mindset

Information and resources about growth mindset, finding your voice and self-advocacy, available on the CFStrong website. Read More

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Infection Control

Infection Control

CFWA provides various factsheets for people with CF, carers, and family. This includes information on cepacia, common infections, Pseudomonas, immunizations, infection and prevention control and the flu. (See infection control section) Read More

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Transplant

Transplant

Advances in CF treatment have resulted in people living longer healthier lives, however some people will still require an organ transplant to further prolong their lives. This link provides information on lung transplant, transplant support and other available resources. Read More

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Medications and Procedures

Medications and Procedures

CFWA provides various factsheets for people with CF, carers, and family. This includes information on bronchoscopy, CFTR modulator therapies, enzymes, lung transplant, mediations, nebulisers, percutaneous endoscopic gastrostomy (PEG), peripherally inserted central catheter (PICC), pill swallowing, ports and spirometry (see Medications and procedures section). Read More

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Mental Health

Mental Health

CFWA provides various factsheets for people with CF, carers, and family. This includes information on anxiety and young people, depression and young people, loneliness and isolation, mental health care plan and rebates, procedural anxiety in young people and adults, spoon theory and post traumatic stress disorder (see Mental health section). Read More

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School and day-care

School and day-care

CFWA provides various factsheets for people with CF, carers, and family. This includes information on going to day-care with CF, starting school, going to high school, exercise and sport in school and school camps (see School and daycare section). Read More

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Sexual Health and Fertility

Sexual Health and Fertility

CFWA provides various factsheets for people with CF, carers, and family. This includes information on family planning for CF partners, female and male reproduction, future pregnancies for CF carriers and pregnancy. Read More

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Travel with CF

Travel with CF

CFWA factsheets on travel tips for adults and when travelling with children (see Travel with CF section). Read More

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CF Talk

CF Talk

A range of videos from people living with CF as young people, adults and carers. This series of short films covers a range of topics including achievements, travel, community and words of wisdom. Young people with CF discuss how they have dealt with school, relationships, work and balancing their life with CF treatment. The Parents and Carers series cover a range of topics relating to having someone with CF in the family, from the perspective of parents, grandparents and siblings. Read More

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