Friend of a person with CF

Cystic Fibrosis Western Australia (CFWA)

Paula Woodward March 21, 2023

CFWA is the peak body for all people living with CF in Western Australia. They provide a comprehensive range of services, in home support, resources, education and advocacy. They engage in and support national research. the CFWA website includes heaps of resources and factsheets about living with CF as well as stories from the CF community. Read More

Trusted Care

Firefly Admin March 21, 2023

Trusted Care, a subsidiary of Cystic Fibrosis Queensland, is an NDIS provider, supporting to people with CF to allow them to live an ordinary life. Their plan management and support services are available to all Australians who qualify for NDIS support. Read More

Cystic Fibrosis Trust

Firefly Admin March 21, 2023

UK-based Cystic Fibrosis Trust is "the charity uniting people to stop cystic fibrosis". They provide information and support relating to being physically well, mental well, and being fulfilled. The "Life with CF" section on their website includes the Award-winning pre-school and primary school pack, as well as information and resources to support people through every life stage. Read More

Beyond Blue

Firefly Admin March 21, 2023

Beyond Blue is an Australian mental health foundation that provides information and support for anxiety, depression and suicide. They have online information and a check in to assess your mental health. They provide free 24/7 access to phone/online counsellors, an online peer support community, and a mental health coaching program. Read More

CarerHelp

Paula Woodward March 21, 2023

CarerHelp provides access to high quality information and resources to help you feel informed, prepared and supported if you are caring for someone who is seriously ill. The website can connect you to services, help you to engage with healthcare teams and look after yourself. Read More

ReachOut

Paula Woodward March 21, 2023

ReachOut helps young people access mental health support. They provide online mental health support, peer support, information and resources for young people, parents, carers and teachers. Read More

Youth Law Australia

Firefly Admin March 21, 2023

Youth Law Australia, also known as Lawstuff, provide free, confidential, online legal advice, assistance and referrals for young people. They provide a range of information on topics such as work, sex and dating, moving out of home and cyberbullying. Read More

Carer Gateway

Firefly Admin March 21, 2023

Carer Gateway provides free services and support for carers. They offer in-person and online peer support groups, tailored support packages, transport services, in-person and online counselling and coaching; online skills courses and access to emergency respite. Read More

Cystic Fibrosis Foundation (CFF)

Paula Woodward March 21, 2023

Cystic Fibrosis Foundation is a US-based organisation that offers a variety of information about CF and managing CF, health and wellness, nutrition, family life, travel, treatment and care. Their rich community blog offers stories from a wide range of people living with CF. Bear in mind the content is written for a US audience - especially around insurance and treatment costs. Read More

Cystic Fibrosis Community Care (CFCC)

Paula Woodward March 21, 2023

CFCC promotes awareness of CF and provides support, advocacy and information to the CF community across NSW and VIC. They also fund medical research. CFCC provide direct services and have a range of information and resources on their website about CF and living with CF. They also have specific websites for parents of a newly diagnosed child with CF (see CF Baby Steps: http://www.cysticfibrosisbabysteps.org.au/) and for young people and adults living with CF (see CFStrong: https://cfstrong.org.au/). Read More