Family of a person with CF

CFStrong: Financial Wellbeing

Firefly Admin May 8, 2023

Information and resources about financial wellbeing, available on the CFStrong website. CFStrong includes stories from people living with CF who share their experience. Read More

CFStrong: Growth Mindset

Firefly Admin May 8, 2023

Information and resources about growth mindset, finding your voice and self-advocacy, available on the CFStrong website. Read More

CFStrong: Travel Medication Checklist

Firefly Admin May 8, 2023

CFStrong medication and supplies checklist, so you don’t forget anything you need for managing your CF during your next trip. Read More

Time management

Firefly Admin May 8, 2023

This information provides some tips on prioritising tasks, controlling procrastination and managing commitments in order to better manage time. This fact sheet is available via the CFStrong website. Read More

Why you need a GP

Firefly Admin May 8, 2023

This information covers some of the reasons to have a GP and considerations when choosing a GP for a person with CF. This fact sheet is available via the CFStrong website. Read More

Hospital

Firefly Admin May 8, 2023

CFWA provides various factsheets for people with CF, carers, and family. This includes information on first hospital admission, and managing procedures in babies, toddlers and children (see Hospital section). Links to other resources are also provided. Read More

Infection Control

Firefly Admin May 8, 2023

CFWA provides various factsheets for people with CF, carers, and family. This includes information on cepacia, common infections, Pseudomonas, immunizations, infection and prevention control and the flu. (See infection control section) Read More

Transplant

Firefly Admin May 8, 2023

Advances in CF treatment have resulted in people living longer healthier lives, however some people will still require an organ transplant to further prolong their lives. This link provides information on lung transplant, transplant support and other available resources. Read More

Medications and Procedures

Firefly Admin May 8, 2023

CFWA provides various factsheets for people with CF, carers, and family. This includes information on bronchoscopy, CFTR modulator therapies, enzymes, lung transplant, mediations, nebulisers, percutaneous endoscopic gastrostomy (PEG), peripherally inserted central catheter (PICC), pill swallowing, ports and spirometry (see Medications and procedures section). Read More

Mental Health

Firefly Admin May 8, 2023

CFWA provides various factsheets for people with CF, carers, and family. This includes information on anxiety and young people, depression and young people, loneliness and isolation, mental health care plan and rebates, procedural anxiety in young people and adults, spoon theory and post traumatic stress disorder (see Mental health section). Read More