Family of a person with CF

Ask Izzy

Firefly Admin March 21, 2023

Ask Izzy is a website that connects people in need with housing, a meal, money help, family violence support, counselling and much more. It is free and anonymous, with thousands of services listed across Australia. Read More

The Australian Centre for Grief and Bereavement

Firefly Admin March 21, 2023

The Australian Centre for Grief and Bereavement provides education, training and services for those working in grief and bereavement as well as support services and a referral service. Read More

Carer Skills – Social Connections

Firefly Admin March 21, 2023

The Carer Gateway has a range of online skills courses to support wellbeing and understanding of legal responsibilities relating to the caring role. This module focuses on the impact of caring on your relationships with others and provides practical tips to increase social connectedness. Each free online self-paced learning modules takes 20–40 minutes to complete and you can download your responses to questions in the module to use as a resource and reminder. Read More

My Health Record

Paula Woodward March 21, 2023

A national, online health record system that provides a secure summary of your health information. You control what goes into it and you can share it with healthcare professionals. Read More

Comfort Kids | Toolkit for families

Paula Woodward March 21, 2023

The Comfort Kids Toolkit for families provides links to written information and videos about how to help your child with medical tests and procedures including what to expect and relaxation techniques. Read More

Comfort kids | For kids

Paula Woodward March 21, 2023

The Comfort Kids For Kids page includes links to resources websites to help children and their families prepare for hospital procedures and hospital stays. There are also a series of coping activities for children aged 7-11 years to assist with anxiety. Read More

Lifeline Self Support Toolkit (beta)

Firefly Admin March 21, 2023

The Lifeline Self Support Toolkit offers tools, techniques and information to help you to understand whatever challenges you’re going through and learn ways to self-manage your mental health and wellbeing. Read More

Health Direct

Firefly Admin March 21, 2023

A government funded service providing quality health information, guidance and advice. Read More

Chronic Disease General Practitioner (GP) Management Plans and Team Care Arrangements

Firefly Admin March 21, 2023

These plans can be provided by your GP if you have a chronic medical condition. They help you to coordinate your care and provide subsidised access to multidisciplinary care including exercise physiology, dietetic and psychology services among others. Read More

Perx Health

Paula Woodward March 21, 2023

Perx Health is a chronic condition management program. The Perx app aims to simplify your daily health routine by helping to manage medications and form healthy habits. Perx makes keeping track of your most important medical information and monitoring progress fun and rewarding. CFA have made Perx free to people living with CF. Download by following the link . On sign-up you may be asked for a Member Code – if so please enter “roses”. Read More