Child with CF

Victorian Patient Travel Assistance Scheme (VPTAS)

Firefly Admin March 21, 2023

VIC: VPTAS covers some of the travel and accommodation costs to and from the hospital for families who live more than 100km from the hospital. Read More

South Australia Patient Assistance Transport Scheme (PATS)

Firefly Admin March 21, 2023

SA: PATS provides financial assistance towards people’s transport and accommodation costs when they’re required to travel more than 100km each way to access necessary medical specialist services that are not available locally. Read More

Western Australia Patient Assisted Travel Scheme (PATS)

Firefly Admin March 21, 2023

WA: PATS provides subsidies to assist with travel and accommodation costs associated with accessing a specialist medical service are available for eligible patients. Read More

Tasmania Patient Travel Assistance Scheme (PTAS)

Firefly Admin March 21, 2023

TAS: PTAS covers some travel and accommodation costs for Tasmanians who need to travel long distances for specialised care. Read More

TLC for Kids

Paula Woodward March 21, 2023

TLC for Kids gives practical and emotional relief to sick kids and their families across Australia. Upon referral from a Healthcare Professional, they provide distraction, to reduce anxiety associated with hospital visits, and provide services, memorable experiences and financial assistance. Read More

Kids Help Line

Paula Woodward March 21, 2023

Kids Helpline is Australia’s free, confidential 24/7 online and phone counselling service for young people 5-25 years old. Read More

Cystic Fibrosis Foundation (CFF)

Paula Woodward March 21, 2023

Cystic Fibrosis Foundation is a US-based organisation that offers a variety of information about CF and managing CF, health and wellness, nutrition, family life, travel, treatment and care. Their rich community blog offers stories from a wide range of people living with CF. Bear in mind the content is written for a US audience - especially around insurance and treatment costs. Read More

Cystic Fibrosis Community Care (CFCC)

Paula Woodward March 21, 2023

CFCC promotes awareness of CF and provides support, advocacy and information to the CF community across NSW and VIC. They also fund medical research. CFCC provide direct services and have a range of information and resources on their website about CF and living with CF. They also have specific websites for parents of a newly diagnosed child with CF (see CF Baby Steps: http://www.cysticfibrosisbabysteps.org.au/) and for young people and adults living with CF (see CFStrong: https://cfstrong.org.au/). Read More

Cystic Fibrosis Queensland (CFQLD)

Firefly Admin March 21, 2023

CFQLD is the peak body for all people living with CF in Queensland. CFQLD provides support services, advocacy, education, research funding and practical support. They host a range of information and resources on their website about CF and living with CF as well as links to CF Smart (education program) and CFStrong (information for young adults and adults living with CF). Read More

Cystic Fibrosis South Australia (CFSA)

Firefly Admin March 21, 2023

CFSA is the peak body for all people living with CF in South Australia. CFSA provides access to information, support services, advocacy, education and practical support. They also contribute to national research. They have information about CF and living with CF on their website. Read More