Child with CF

Cystic Fibrosis Western Australia (CFWA)

Paula Woodward March 21, 2023

CFWA is the peak body for all people living with CF in Western Australia. They provide a comprehensive range of services, in home support, resources, education and advocacy. They engage in and support national research. the CFWA website includes heaps of resources and factsheets about living with CF as well as stories from the CF community. Read More

Cystic Fibrosis Australian Capital Territory (ACT)

Firefly Admin March 21, 2023

CFACT is the peak body for people living with CF in ACT. They provide supports services that focus on reducing the burden of CF as well as events. Read More

Trusted Care

Firefly Admin March 21, 2023

Trusted Care, a subsidiary of Cystic Fibrosis Queensland, is an NDIS provider, supporting to people with CF to allow them to live an ordinary life. Their plan management and support services are available to all Australians who qualify for NDIS support. Read More

Cystic Fibrosis Trust

Firefly Admin March 21, 2023

UK-based Cystic Fibrosis Trust is "the charity uniting people to stop cystic fibrosis". They provide information and support relating to being physically well, mental well, and being fulfilled. The "Life with CF" section on their website includes the Award-winning pre-school and primary school pack, as well as information and resources to support people through every life stage. Read More

Comfort Kids

Paula Woodward March 21, 2023

The Comfort Kids Program provides procedural pain management at the Royal Children's Hospital in Melbourne. The aim is to minimise pain, distress and anxiety associated with medical procedures through a multi-modal approach, combining non-pharmacological and pharmacological interventions. Read More

Queensland Community Access Scheme (QCSS)

Firefly Admin March 21, 2023

QCSS provides support services that maintain and promote independence and quality of life for individuals with a disability, chronic health condition or mental health condition who do not meet eligibility for the NDIS. Read More

Queensland Health Patient Travel Subsidy Scheme (PTSS)

Firefly Admin March 21, 2023

QLD: PTSS provides subsidised travel for residents of Queensland who need to travel more than 50 km to access a specialist health service. An application must be made before travelling so approval can be obtained. Visit your local hospital Patient Travel Office for more information. Read More

New South Wales Health Transport for Health (IPTAAS)

Firefly Admin March 21, 2023

NSW: IPTAAS provides subsidised travel for residents of New South Wales resident who live more than 100 km from your specialist service. A referral from your medical professional is required. Read More

Australian Capital Territory Interstate Patient Travel Assistance Scheme (IPTAS)

Firefly Admin March 21, 2023

ACT: IPTAS supports permanent residents of the ACT to access specialist medical treatment and oral surgical health care (excluding routine dental work) outside of the ACT by assisting with travel and accommodation costs. Read More

Northern Territory Government Patient Assistance Travel Scheme (PATS)

Firefly Admin March 21, 2023

NT: PATS provides financial help for travel and accommodation expenses if you need to travel a long distance to see an approved medical specialist. You must be referred by a medical professional to the nearest approved specialist. Read More