Child with CF

What is CF?

Firefly Admin March 21, 2023

An overview of CF, who gets CF, treatment, diagnosis and carrier screening. Read More

CF Donut

Firefly Admin March 21, 2023

CF Donut is a health portal from Cystic Fibrosis Australia that provides information about co-morbidities associated with CF across every bodily function. Read More

Perx Health

Paula Woodward March 21, 2023

Perx Health is a chronic condition management program. The Perx app aims to simplify your daily health routine by helping to manage medications and form healthy habits. Perx makes keeping track of your most important medical information and monitoring progress fun and rewarding. CFA have made Perx free to people living with CF. Download by following the link . On sign-up you may be asked for a Member Code – if so please enter “roses”. Read More

CFStrong

Firefly Admin March 21, 2023

CFStrong is designed to inform and educate young people and adults have CF or know someone with CF. The content covers a broad range of articles, conversations and personal stories. Choose to view content as a Young Person or Adult with CF. Topics include: Lifestyle, Medical, Wellbeing, Community. Read More

CFPhysio

Paula Woodward March 21, 2023

CFPhysio provides evidence based education for physiotherapists working in CF care. This resource is also designed for individuals with CF and their families, carers, and community. The education provided does not replace routine clinical care. This resource aims to empower individuals with CF to become involved and proactive in their healthcare journey. Read More

Beam Cystic Fibrosis

Firefly Admin March 21, 2023

Beam is an online resource that provides access to exercise programs tailored to the health needs of people with different health conditions, including a specific program for CF. It includes progressive programs, live and on-demand classes and community and motivational support. Monthly subscription is required after a 2-week free trial. Read More

CF Source

Firefly Admin March 21, 2023

Information and resources about the science behind CF, how CF affects the body (symptoms) as well as tips on living with CF including daily routine, nutrition, exercise, sleep and travel. This website for consumers and health professionals is provided by Vertex Pharmaceuticals. Read More

Chronic Disease General Practitioner (GP) Management Plans and Team Care Arrangements

Firefly Admin March 21, 2023

These plans can be provided by your GP if you have a chronic medical condition. They help you to coordinate your care and provide subsidised access to multidisciplinary care including exercise physiology, dietetic and psychology services among others. Read More

Health Direct

Firefly Admin March 21, 2023

A government funded service providing quality health information, guidance and advice. Read More

Lifeline Self Support Toolkit (beta)

Firefly Admin March 21, 2023

The Lifeline Self Support Toolkit offers tools, techniques and information to help you to understand whatever challenges you’re going through and learn ways to self-manage your mental health and wellbeing. Read More