Child with CF

School and day-care

Firefly Admin May 8, 2023

CFWA provides various factsheets for people with CF, carers, and family. This includes information on going to day-care with CF, starting school, going to high school, exercise and sport in school and school camps (see School and daycare section). Read More

Travel with CF

Firefly Admin May 8, 2023

CFWA factsheets on travel tips for adults and when travelling with children (see Travel with CF section). Read More

What is Occupational Therapy?

Firefly Admin May 8, 2023

CFWA provides various factsheets for people with CF, carers, and family. This fact sheet presents an overview of occupational therapy. Read More

LWWCF Insights: Living Well Worksheet

Firefly Admin May 8, 2023

The Living Well Worksheet has been developed as a practical tool you can use to help you work through any of the LWWCF Insights topics and resources, or other area of life where you want to make a positive change. or reach a goal. It is available as an interactive PDF form that you can complete as you work through the steps described in the LWWCF Insights resources. Read More

LWWCF Insights: Managing Daily Care (Adherence)

Firefly Admin May 8, 2023

Sources of information and inspiration developed based on the experience of those living with CF as patients, carers and families, and informed by health professionals, that aim to maximise your self-belief and capabilities so that you can Live Well with CF. This resource addresses the topic of maximising adherence to treatment and managing daily care. It provides a 5-step process to guide you through self-reflection and planning as you start your journey towards living well with CF. Read More

LWWCF Insights: Defining Living Well with CF

Firefly Admin May 8, 2023

Sources of information and inspiration developed based on the experience of those living with CF as patients, carers and families, and informed by health professionals, that aim to maximise your self-belief and capabilities so that you can Live Well with CF. This resource considers what it means to live well with CF by making time to understand yourself, your strengths, needs, goals and priorities. It provides a 5-step process to guide you through self-reflection and planning as you start your journey towards living well with CF. Read More

LWWCF Insights Resources

Firefly Admin May 8, 2023

Sources of information and inspiration that aim to maximise your self-belief and capabilities so that you can Live Well with CF. These resources have been developed based on the experience of those living with CF as patients, carers and families, and informed by health professionals. Topics addressed are designed to help to foster agency, resilience, social support, belonging and connection, positive identity, adherence and self-management (with more topics coming soon). Read More

CFPhysio – for people with CF and caregivers

Paula Woodward April 28, 2023

Information and resources about physiotherapy treatment and management for individuals with CF, parents and caregivers. Read More

Mental Health and Wellbeing

Paula Woodward March 23, 2023

A detailed resource on a range of aspects of mental health and wellbeing for the parents of children with CF. It includes descriptive information, stories from other parents to read and watch, as well as links to organisations that can help with further information. Read More

General Health

Paula Woodward March 23, 2023

Factsheets on exercise for children and adults, smoking, summertime and CF and toilet training for toddlers. Read More