Child with CF

Cystic Fibrosis Tasmania (CFT)

Firefly Admin March 21, 2023

CFT is the peak body for all people living with CF in Tasmania. They provide a range of services including counselling and financial support, educational support and advocacy. Read More

Cystic Fibrosis Australia (CFA)

Firefly Admin March 21, 2023

CFA is the peak consumer body for people living with CF in Australia. They focus on collaborative programmes, research, funding, partnerships and advocacy. CFA encourages cohesion amongst the state and territory bodies, manages the national CF data registry, leads the national research program, conducts a biennial CF conference and supports the quality improvement program. They have useful information about CF, living with CF, and mental health on their website as well as links to CF-Donut (information about CF and comorbidities) and Consumer Connect. Read More

Cystic Fibrosis New Zealand (CFNZ)

Firefly Admin March 21, 2023

CFNZ is the peak consumer body for people living with CF in New Zealand. They focus on support, research, funding, and advocacy. CFNZ manages the national CF data registry and leads the national research strategy. They have useful information about CF and living with CF, including supporting a family with CF, parenting a child with CF, family planning, CF at school and work, and travelling with CF. Read More

CF at school

Firefly Admin March 21, 2023

A collection of CFNZ resources for teachers and schools, parents and young children (such as siblings, class mates, and friends), explaining how to support a child with CF at school. Read More

Beyond Blue

Firefly Admin March 21, 2023

Beyond Blue is an Australian mental health foundation that provides information and support for anxiety, depression and suicide. They have online information and a check in to assess your mental health. They provide free 24/7 access to phone/online counsellors, an online peer support community, and a mental health coaching program. Read More