Living Well With Cystic Fibrosis

Archive

CFStrong: Mental Wellbeing of Loved Ones

CFStrong: Mental Wellbeing of Loved Ones

Information and resources about mental wellbeing for loved ones, available on the CFStrong website. CFStrong includes stories from people living with CF who share their experience. Read More

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CFStrong: Psychosocial Wellbeing for Adults

CFStrong: Psychosocial Wellbeing for Adults

Information and resources about psychosocial wellbeing, available on the CFStrong website. CFStrong includes stories from people living with CF who share their experience. Read More

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CFStrong: Physical Wellbeing for Adults

CFStrong: Physical Wellbeing for Adults

Information and resources about physical wellbeing, available on the CFStrong website, including the role for exercise and fitness, and managing CF treatments. CFStrong includes stories from people living with CF who share their experience. Read More

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LWWCF Insights Resources

LWWCF Insights Resources

Sources of information and inspiration that aim to maximise your self-belief and capabilities so that you can Live Well with CF. These resources have been developed based on the experience of those living with CF as patients, carers and families, and informed by health professionals. Topics addressed are designed to help to foster agency, resilience, social support, belonging and connection, positive identity, adherence and self-management (with more topics coming soon). Read More

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LWWCF Insights: Defining Living Well with CF

LWWCF Insights: Defining Living Well with CF

Sources of information and inspiration developed based on the experience of those living with CF as patients, carers and families, and informed by health professionals, that aim to maximise your self-belief and capabilities so that you can Live Well with CF. This resource considers what it means to live well with CF by making time to understand yourself, your strengths, needs, goals and priorities. It provides a 5-step process to guide you through self-reflection and planning as you start your journey towards living well with CF. Read More

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LWWCF Insights: Managing Daily Care (Adherence)

LWWCF Insights: Managing Daily Care (Adherence)

Sources of information and inspiration developed based on the experience of those living with CF as patients, carers and families, and informed by health professionals, that aim to maximise your self-belief and capabilities so that you can Live Well with CF. This resource addresses the topic of maximising adherence to treatment and managing daily care. It provides a 5-step process to guide you through self-reflection and planning as you start your journey towards living well with CF. Read More

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LWWCF Insights: Living Well Worksheet

LWWCF Insights: Living Well Worksheet

The Living Well Worksheet has been developed as a practical tool you can use to help you work through any of the LWWCF Insights topics and resources, or other area of life where you want to make a positive change. or reach a goal. It is available as an interactive PDF form that you can complete as you work through the steps described in the LWWCF Insights resources. Read More

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CFPhysio – for people with CF and caregivers

CFPhysio – for people with CF and caregivers

Information and resources about physiotherapy treatment and management for individuals with CF, parents and caregivers. Read More

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Mental Health and Wellbeing

Mental Health and Wellbeing

A detailed resource on a range of aspects of mental health and wellbeing for the parents of children with CF. It includes descriptive information, stories from other parents to read and watch, as well as links to organisations that can help with further information. Read More

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General Health

General Health

Factsheets on exercise for children and adults, smoking, summertime and CF and toilet training for toddlers. Read More

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