Adolescent with CF

The Australian Centre for Grief and Bereavement

Firefly Admin March 21, 2023

The Australian Centre for Grief and Bereavement provides education, training and services for those working in grief and bereavement as well as support services and a referral service. Read More

My Health Record

Paula Woodward March 21, 2023

A national, online health record system that provides a secure summary of your health information. You control what goes into it and you can share it with healthcare professionals. Read More

Comfort Kids | Toolkit for families

Paula Woodward March 21, 2023

The Comfort Kids Toolkit for families provides links to written information and videos about how to help your child with medical tests and procedures including what to expect and relaxation techniques. Read More

Lifeline Self Support Toolkit (beta)

Firefly Admin March 21, 2023

The Lifeline Self Support Toolkit offers tools, techniques and information to help you to understand whatever challenges you’re going through and learn ways to self-manage your mental health and wellbeing. Read More

Health Direct

Firefly Admin March 21, 2023

A government funded service providing quality health information, guidance and advice. Read More

Chronic Disease General Practitioner (GP) Management Plans and Team Care Arrangements

Firefly Admin March 21, 2023

These plans can be provided by your GP if you have a chronic medical condition. They help you to coordinate your care and provide subsidised access to multidisciplinary care including exercise physiology, dietetic and psychology services among others. Read More

Spill

Firefly Admin March 21, 2023

Spill is a sexual health website specifically for young people with CF. It covers topics including puberty, understanding your body, sexual health, sex, fertility and contraception. Read More

CFStrong

Firefly Admin March 21, 2023

CFStrong is designed to inform and educate young people and adults have CF or know someone with CF. The content covers a broad range of articles, conversations and personal stories. Choose to view content as a Young Person or Adult with CF. Topics include: Lifestyle, Medical, Wellbeing, Community. Read More

Consumer Connect

Paula Woodward March 21, 2023

Consumer Connect is CFA's online platform for people with CF and their support networks to come together for support and knowledge sharing. Registration needed for full access. Read More

CFPhysio

Paula Woodward March 21, 2023

CFPhysio provides evidence based education for physiotherapists working in CF care. This resource is also designed for individuals with CF and their families, carers, and community. The education provided does not replace routine clinical care. This resource aims to empower individuals with CF to become involved and proactive in their healthcare journey. Read More