Resources

Trusted Care

Firefly Admin March 21, 2023

Trusted Care, a subsidiary of Cystic Fibrosis Queensland, is an NDIS provider, supporting to people with CF to allow them to live an ordinary life. Their plan management and support services are available to all Australians who qualify for NDIS support. Read More

Cystic Fibrosis Trust

Firefly Admin March 21, 2023

UK-based Cystic Fibrosis Trust is "the charity uniting people to stop cystic fibrosis". They provide information and support relating to being physically well, mental well, and being fulfilled. The "Life with CF" section on their website includes the Award-winning pre-school and primary school pack, as well as information and resources to support people through every life stage. Read More

Comfort Kids

Paula Woodward March 21, 2023

The Comfort Kids Program provides procedural pain management at the Royal Children's Hospital in Melbourne. The aim is to minimise pain, distress and anxiety associated with medical procedures through a multi-modal approach, combining non-pharmacological and pharmacological interventions. Read More

Advanced Personnel Management (APM)

Firefly Admin March 21, 2023

APM helps people to find employment, improve their health and wellbeing and participate in the community. Their services help people with injury, illness or disability, children and older adults, unemployed people, and those facing hardship or harm. Read More

Ronald McDonald Learning Program

Firefly Admin March 21, 2023

The Ronald McDonald Learning Program assists school-aged children with serious illnesses and injuries to catch up on missed education following treatment and recovery. They provide a suite of educational support services, including therapy sessions and one-on-one tutorials, tailored to students’ individual needs. Read More

TLC for Kids

Paula Woodward March 21, 2023

TLC for Kids gives practical and emotional relief to sick kids and their families across Australia. Upon referral from a Healthcare Professional, they provide distraction, to reduce anxiety associated with hospital visits, and provide services, memorable experiences and financial assistance. Read More

Beyond Blue

Firefly Admin March 21, 2023

Beyond Blue is an Australian mental health foundation that provides information and support for anxiety, depression and suicide. They have online information and a check in to assess your mental health. They provide free 24/7 access to phone/online counsellors, an online peer support community, and a mental health coaching program. Read More

Siblings Australia

Firefly Admin March 21, 2023

Siblings Australia provides support for siblings of children and adults with disability. They provide information, resources and stories focusing on sibling experiences, roles and practical support. They provide peer support services for siblings and one-on-one support for parents and siblings. They also provide professional education and accreditation. (Note, content is general in nature, not specifically focused on CF). Read More

CarerHelp

Paula Woodward March 21, 2023

CarerHelp provides access to high quality information and resources to help you feel informed, prepared and supported if you are caring for someone who is seriously ill. The website can connect you to services, help you to engage with healthcare teams and look after yourself. Read More

ReachOut

Paula Woodward March 21, 2023

ReachOut helps young people access mental health support. They provide online mental health support, peer support, information and resources for young people, parents, carers and teachers. Read More