Resource

Ask Izzy

Firefly Admin March 21, 2023

Ask Izzy is a website that connects people in need with housing, a meal, money help, family violence support, counselling and much more. It is free and anonymous, with thousands of services listed across Australia. Read More

Perx Health

Paula Woodward March 21, 2023

Perx Health is a chronic condition management program. The Perx app aims to simplify your daily health routine by helping to manage medications and form healthy habits. Perx makes keeping track of your most important medical information and monitoring progress fun and rewarding. CFA have made Perx free to people living with CF. Download by following the link . On sign-up you may be asked for a Member Code – if so please enter “roses”. Read More

CF Smart

Firefly Admin March 21, 2023

CF Smart is a free resource for teachers and educators to improve understanding of CF care in education settings. It includes access to free e-learning about how to support your student with CF in the classroom as well as downloadable resources. Read More

CF Baby Steps

Paula Woodward March 21, 2023

CF Baby Steps provides a collection of resources for families of newborn babies following CF diagnosis. It has been developed through collaboration between CFCC, the Royal Children's Hospital and Monash Children's Hospital, in conjunction with parents. It includes articles on a range of topics, parents sharing their experience, and information about emotional support. Read More

CFStrong

Firefly Admin March 21, 2023

CFStrong is designed to inform and educate young people and adults have CF or know someone with CF. The content covers a broad range of articles, conversations and personal stories. Choose to view content as a Young Person or Adult with CF. Topics include: Lifestyle, Medical, Wellbeing, Community. Read More

Consumer Connect

Paula Woodward March 21, 2023

Consumer Connect is CFA's online platform for people with CF and their support networks to come together for support and knowledge sharing. Registration needed for full access. Read More

CFPhysio

Paula Woodward March 21, 2023

CFPhysio provides evidence based education for physiotherapists working in CF care. This resource is also designed for individuals with CF and their families, carers, and community. The education provided does not replace routine clinical care. This resource aims to empower individuals with CF to become involved and proactive in their healthcare journey. Read More

Beam Cystic Fibrosis

Firefly Admin March 21, 2023

Beam is an online resource that provides access to exercise programs tailored to the health needs of people with different health conditions, including a specific program for CF. It includes progressive programs, live and on-demand classes and community and motivational support. Monthly subscription is required after a 2-week free trial. Read More

CF Source

Firefly Admin March 21, 2023

Information and resources about the science behind CF, how CF affects the body (symptoms) as well as tips on living with CF including daily routine, nutrition, exercise, sleep and travel. This website for consumers and health professionals is provided by Vertex Pharmaceuticals. Read More

Travelling with CF

Firefly Admin March 21, 2023

A collection of CFNZ resources for people with CF and carers about safe travel with CF, including information about climate and destination, infection control, medication and equipment, and more. Links available for more information. Read More