Resource

Depression, Anxiety and CF

Paula Woodward March 21, 2023

Article from CFA on what the International mental health, depression and anxiety guidelines mean for for people living with CF. Includes a summary of the recommendations from guidelines for people with cystic fibrosis and parents who take care of children with CF to help understand the impact of CF on depression and anxiety. Read More

Chronic Disease General Practitioner (GP) Management Plans and Team Care Arrangements

Firefly Admin March 21, 2023

These plans can be provided by your GP if you have a chronic medical condition. They help you to coordinate your care and provide subsidised access to multidisciplinary care including exercise physiology, dietetic and psychology services among others. Read More

Spill

Firefly Admin March 21, 2023

Spill is a sexual health website specifically for young people with CF. It covers topics including puberty, understanding your body, sexual health, sex, fertility and contraception. Read More

Health Direct

Firefly Admin March 21, 2023

A government funded service providing quality health information, guidance and advice. Read More

Lifeline Self Support Toolkit (beta)

Firefly Admin March 21, 2023

The Lifeline Self Support Toolkit offers tools, techniques and information to help you to understand whatever challenges you’re going through and learn ways to self-manage your mental health and wellbeing. Read More

Comfort kids | Health professionals

Paula Woodward March 21, 2023

Comfort Kids for health Professionals page provides Workshops, lists guidelines and provides further links to a variety of education resources, podcasts and training activities to support professional development and best practice in procedural pain management. Read More

Comfort kids | For kids

Paula Woodward March 21, 2023

The Comfort Kids For Kids page includes links to resources websites to help children and their families prepare for hospital procedures and hospital stays. There are also a series of coping activities for children aged 7-11 years to assist with anxiety. Read More

Comfort Kids | Toolkit for families

Paula Woodward March 21, 2023

The Comfort Kids Toolkit for families provides links to written information and videos about how to help your child with medical tests and procedures including what to expect and relaxation techniques. Read More

My Health Record

Paula Woodward March 21, 2023

A national, online health record system that provides a secure summary of your health information. You control what goes into it and you can share it with healthcare professionals. Read More

Carer Skills – Social Connections

Firefly Admin March 21, 2023

The Carer Gateway has a range of online skills courses to support wellbeing and understanding of legal responsibilities relating to the caring role. This module focuses on the impact of caring on your relationships with others and provides practical tips to increase social connectedness. Each free online self-paced learning modules takes 20–40 minutes to complete and you can download your responses to questions in the module to use as a resource and reminder. Read More