Resource

Travel with CF

Firefly Admin May 8, 2023

CFWA factsheets on travel tips for adults and when travelling with children (see Travel with CF section). Read More

Hospital

Firefly Admin May 8, 2023

CFWA provides various factsheets for people with CF, carers, and family. This includes information on first hospital admission, and managing procedures in babies, toddlers and children (see Hospital section). Links to other resources are also provided. Read More

Infection Control

Firefly Admin May 8, 2023

CFWA provides various factsheets for people with CF, carers, and family. This includes information on cepacia, common infections, Pseudomonas, immunizations, infection and prevention control and the flu. (See infection control section) Read More

Transplant

Firefly Admin May 8, 2023

Advances in CF treatment have resulted in people living longer healthier lives, however some people will still require an organ transplant to further prolong their lives. This link provides information on lung transplant, transplant support and other available resources. Read More

Medications and Procedures

Firefly Admin May 8, 2023

CFWA provides various factsheets for people with CF, carers, and family. This includes information on bronchoscopy, CFTR modulator therapies, enzymes, lung transplant, mediations, nebulisers, percutaneous endoscopic gastrostomy (PEG), peripherally inserted central catheter (PICC), pill swallowing, ports and spirometry (see Medications and procedures section). Read More

Mental Health

Firefly Admin May 8, 2023

CFWA provides various factsheets for people with CF, carers, and family. This includes information on anxiety and young people, depression and young people, loneliness and isolation, mental health care plan and rebates, procedural anxiety in young people and adults, spoon theory and post traumatic stress disorder (see Mental health section). Read More

Nutrition

Firefly Admin May 8, 2023

CFWA provides various factsheets for people with CF, carers, and family. This includes information on dietary supplements, eating when unwell, diet and exercise, fat protein and carbohydrates, healthy fats, maintaining health weight, managing nutrition, modulator drugs and diet, nutrition for babies and children, pregnancy and nutrition, post-transplant nutrition and salt and fluids. (Seee Nutrtion section) Read More

School and day-care

Firefly Admin May 8, 2023

CFWA provides various factsheets for people with CF, carers, and family. This includes information on going to day-care with CF, starting school, going to high school, exercise and sport in school and school camps (see School and daycare section). Read More

Sexual Health and Fertility

Firefly Admin May 8, 2023

CFWA provides various factsheets for people with CF, carers, and family. This includes information on family planning for CF partners, female and male reproduction, future pregnancies for CF carriers and pregnancy. Read More

CF Talk

Firefly Admin May 8, 2023

A range of videos from people living with CF as young people, adults and carers. This series of short films covers a range of topics including achievements, travel, community and words of wisdom. Young people with CF discuss how they have dealt with school, relationships, work and balancing their life with CF treatment. The Parents and Carers series cover a range of topics relating to having someone with CF in the family, from the perspective of parents, grandparents and siblings. Read More