Cystic Fibrosis NZ

CF Nutrition Guidelines ANZ

Paula Woodward March 21, 2023

CF Nutrition Guidelines for Australia and New Zealand, primarily for health professionals but of interest to other people living with CF. Published on the websites of Cystic Fibrosis Australia, Cystic Fibrosis NZ and Thoracic Society of Australia and New Zealand in 2021. Read More

Travelling with CF

Firefly Admin March 21, 2023

A collection of CFNZ resources for people with CF and carers about safe travel with CF, including information about climate and destination, infection control, medication and equipment, and more. Links available for more information. Read More

Cystic Fibrosis New Zealand (CFNZ)

Firefly Admin March 21, 2023

CFNZ is the peak consumer body for people living with CF in New Zealand. They focus on support, research, funding, and advocacy. CFNZ manages the national CF data registry and leads the national research strategy. They have useful information about CF and living with CF, including supporting a family with CF, parenting a child with CF, family planning, CF at school and work, and travelling with CF. Read More

Supporting a family with CF

Firefly Admin March 21, 2023

This CFNZ resource is for friends and family who would like to know some practical and emotional ways to support someone they know with a child with CF. This includes a link to A guide to cystic fibrosis for family, whānau and friends. Read More

Parenting a child with CF

Paula Woodward March 21, 2023

This CFNZ webpage provides information and tips for parents of a child with CF. IT also includes a link to the SKIP website and app, which provides valuable resources for parenting children under age 5, including deal with behaviours that most parents find stressful. Read More

Family planning

Firefly Admin March 21, 2023

A CFNZ guide for family planning for people with CF and their partners, including links to further information about genetics of CF, and support services. Read More

CF at school

Firefly Admin March 21, 2023

A collection of CFNZ resources for teachers and schools, parents and young children (such as siblings, class mates, and friends), explaining how to support a child with CF at school. Read More

CF at work

Firefly Admin March 21, 2023

A collection of CFNZ resources for people with CF and employers, including links to A guide to cystic fibrosis for employers, and information about employment law and rights. Read More