Cystic Fibrosis Community Care

CFStrong: Psychosocial Wellbeing for Adults

Firefly Admin May 8, 2023

Information and resources about psychosocial wellbeing, available on the CFStrong website. CFStrong includes stories from people living with CF who share their experience. Read More

CFStrong: Physical Wellbeing for Adults

Firefly Admin May 8, 2023

Information and resources about physical wellbeing, available on the CFStrong website, including the role for exercise and fitness, and managing CF treatments. CFStrong includes stories from people living with CF who share their experience. Read More

Living with CF for Carers of Children

Paula Woodward March 21, 2023

Resources for looking after yourself as a carer, coping, preserving your mental health and the caring role. Read More

Living with CF for Newly Diagnosed

Paula Woodward March 21, 2023

Information for newly diagnosed families with CF and links to the Baby Steps program for more information. Read More

Living with CF for Young People

Firefly Admin March 21, 2023

Resources on managing CF, mental health and wellbeing, talking about CF, transition, secondary school, socialising, sexual health, getting a job, travel and concessions and benefits, transplants, university and further study. Read More

Living with CF for Children

Paula Woodward March 21, 2023

Resources on managing CF, mental health and wellbeing, talking about CF, childcare and preschool, primary school, travel and concessions and benefits. Read More

What is CF?

Paula Woodward March 21, 2023

Resources on CF symptoms, causes, diagnosis, treatment and genetic testing. Read More

CFStrong

Firefly Admin March 21, 2023

CFStrong is designed to inform and educate young people and adults have CF or know someone with CF. The content covers a broad range of articles, conversations and personal stories. Choose to view content as a Young Person or Adult with CF. Topics include: Lifestyle, Medical, Wellbeing, Community. Read More

CF Baby Steps

Paula Woodward March 21, 2023

CF Baby Steps provides a collection of resources for families of newborn babies following CF diagnosis. It has been developed through collaboration between CFCC, the Royal Children's Hospital and Monash Children's Hospital, in conjunction with parents. It includes articles on a range of topics, parents sharing their experience, and information about emotional support. Read More

Cystic Fibrosis Community Care (CFCC)

Paula Woodward March 21, 2023

CFCC promotes awareness of CF and provides support, advocacy and information to the CF community across NSW and VIC. They also fund medical research. CFCC provide direct services and have a range of information and resources on their website about CF and living with CF. They also have specific websites for parents of a newly diagnosed child with CF (see CF Baby Steps: http://www.cysticfibrosisbabysteps.org.au/) and for young people and adults living with CF (see CFStrong: https://cfstrong.org.au/). Read More